Showing posts with label health. Show all posts
Showing posts with label health. Show all posts

Sunday, December 21, 2025

When “Feeling Well” Had No Shape

 

When “Feeling Well” Had No Shape

Once, in a PTSD recovery program, I was given my very first assignment.

It wasn’t a worksheet or a list of symptoms. There was no checklist to complete, no scale to circle, no trauma timeline to map out. Instead, the facilitator spoke softly and told us to use whatever words came to us. There was no wrong answer. No pressure to get it “right.”

Then they helped by offering suggestions.

Safe.
Cozy.
Cheerful.
Playful.
Fun.
Introverted.
Spiritual.
Curious.
Loving.

The list went on.

And then came the question, written plainly, almost gently:

What are you like when you are feeling well?

The room grew quiet in that particular way that invites honesty—or exposes the absence of it. Others began to speak. Someone said they were calmer. Another said they laughed more. Someone talked about feeling lighter, more present, less guarded.

When it was my turn, I realized something unsettling.

I knew how to act out all of those words.

I knew how to look safe.
How to behave cozy.
How to sound cheerful.
How to perform playful and fun when it was expected of me.
I knew how to appear spiritual, loving, curious.

I had spent years learning how to wear those traits convincingly.

And it wasn’t just wellness I could perform, I knew how to act out emotions, too.

I knew how to display sadness in acceptable amounts.
How to show concern without needing comfort.
How to cry quietly, briefly, and recover quickly.
How to express gratitude, remorse, even joy in ways that felt appropriate and contained.

I knew what emotions were supposed to look like.

But actually feeling them—letting them rise without controlling them, without editing them, without preparing an explanation—that was different.

That was unfamiliar.
That was unsafe.

Somewhere along the way, I had learned that emotions were things to manage, not inhabit. That feeling too much was dangerous, and feeling too little was preferable to feeling out of control. So I learned performance instead of permission.

I could name emotions.
I could mirror them.
I could respond to them in others.

But allowing myself to feel them—without rushing past, without minimizing, without punishing myself for having them at all—was something I had never really done.

And I didn’t even know how to start.

Not because I was unwilling, but because there was no map. No internal memory of what it felt like to let an emotion move through my body and stay there long enough to be acknowledged. Feelings had always been things to survive, not experiences to explore.

So when the assignment asked me to describe who I was when I felt well, my mind went blank.

I had words for survival.
I had words for vigilance, endurance, and functioning.
I could describe myself when I was bracing, when I was managing, when I was holding everything together with quiet compliance and practiced steadiness.

But well?

That word hovered somewhere far above my lived experience, untethered from memory, floating like a concept meant for other people. It sounded clean and complete, like something with edges and weight and a clear beginning. I could understand it intellectually, but I could not locate it inside myself.

I tried anyway.

I searched backward—through childhood, adolescence, early adulthood—turning over memories like stones, hoping to find a version of myself that existed without threat. 

I was about 3 in this photo
This was in Second Grade

4th Grade

5th grade
I looked for a time before my body learned to stay alert, before my mind learned to scan rooms for danger, before shame arrived faster than thought. I searched for a self that moved through the world without bracing.

I found moments.
Laughter that caught me off guard.
Connection that felt warm and real.
Joy that rose suddenly and honestly.

But they were moments, not a state.
Interruptions are not a foundation.

They existed despite the fear, not because it was absent. Even in happiness, something inside me stayed watchful, waiting for the shift, counting the cost. I had never rested inside joy—I had only visited it.

“Well” had always been conditional.
Temporary.
Borrowed.

It depended on circumstances lining up just right. On no one being angry. On no one needing too much from me. On my body behaving, my emotions staying contained, my needs remaining small enough not to be noticed. Wellness was something I was allowed briefly, as long as I did not inconvenience anyone with it.

Sitting there, staring at that first assignment, another realization surfaced—quiet, but heavy.

If I knew how to act well without actually feeling well…
If I knew how to perform emotions without allowing myself to experience them…
What did that mean?

It meant I had learned performance before safety.
It meant my nervous system knew scripts, not rest.
It meant I could imitate wellness and emotion long before I was ever allowed to live inside either one.

That realization landed harder than I expected—especially for a first assignment that was supposed to introduce healing, not expose its absence.

I saw how deeply my sense of self had been shaped by endurance.

I did not know who I was at rest.
I knew who I was under pressure.

I knew how to disappear.
How to comply before being asked.
How to anticipate moods and needs before they were spoken.
How to absorb harm quietly, efficiently, without drawing attention.

Those skills had once kept me safe. They were adaptive, even necessary. But over time, they had become my identity. I learned who I was by how well I could survive, not by how fully I could be.

So when I was asked—on day one—who I was without the weight of trauma pressing against my nervous system, without the constant internal scanning, without the reflex to apologize for existing, I had nothing to point to.

No internal reference photo.
No baseline.
No memory of inhabiting my body without armor.

And the shame came quickly after that realization.

Not because I hadn’t healed “enough,” but because some part of me believed I should know. As if not having an answer meant I had already failed recovery. As if this blank space was proof that something essential had been missed or broken beyond repair.

It felt like discovering a missing chapter in my own life and assuming it was my fault it had never been written.

But over time—slowly, gently—that first assignment began to shift.

The question did not change.
What are you like when you are feeling well?

But the way it sounded did.

It stopped feeling like an accusation and started sounding like something unfinished. Not a test I was failing, but a sentence with a blank space I had never been given permission to fill.

I still don’t have an answer.

What I have instead is the awareness that I learned how to survive before I ever learned how to feel. That I can name emotions, perform them, even explain them—while still not knowing how to let them live inside my body.

And I don’t yet know how to begin.

But for the first time, I am allowing myself to admit that.

And this time, I am not ashamed of the silence that follows.

Thursday, May 25, 2017

Health Insurance, Michael and thinking about Grandpa Guetschow

This last few weeks I have been really tired. Michael is doing better about not needing us to go in his room when he wakes in the middle of the night but I still hear him in there complaining or moaning. I am so happy that he can put himself back to sleep most nights! I have 2 more days of treatment and new medications and then I have a break for a month as we switch over all our health care to new doctors. I will have to see be seen and re-evaluated by my new doctors before we do any other medications as well as a few tests and blood work YUCK! I think I found my new primary care doctor. I meet him in 2 weeks so I hope it goes well. It just all takes so much time. I am feeling scared about not being with Kaiser any more. Not so much because I love my doctors but I have been with them since I was a teenager and it feels safe. But I am willing to change. Its just hard.

Michael has had a hard 2 weeks and it is not letting up yet. I think he is having a growth spurt and he is hungry all the time and will only eat Peanut Butter and Jelly sandwiches, Hot dogs, Broccoli, pasta and a few fruits. He seems to get overly stimulated really easy these days and will go crazy. It wears me out. He is always crashing into something or rolling around on toys and jumping off things. I am afraid he is going to get really hurt but so far so good. He is starting to hit and push Kaylee really hard and it hurts her. I am not sure how we can brake him of this but we are working on it.

On Tuesday we went swimming at my in-laws house and it was so much fun. We swam for almost 2 hours. Then had dinner there. The kids had the best time there. I am so happy that they both like the water. I need to get Michael into swim lessons soon. Kaylee is pretty good but still needs a few more lessons. I am looking forward to a lot of swimming this year!

I have a job interview today and I am excited and scared all at once. I am happy to have this chance though and if does not work with what I am looking for then I will move on. I am kinda excited it get out of the house though. I think anything that gets me out of the house is good. I have a few other ideas if this job does not work out.

Last night grandma invited us over for dinner and we had steaks. Ken BBQ them. They were so good but it got me think about grandpa and the night before he died we had steaks for dinner. It was Grandma, Grandpa, Lewis and I. It was a wonderful dinner and he talked to all of us so nicely. He told me I was beautiful and that Lewis was so smart. It was like he was saying his goodbye. After dinner he went to bed and did not talk again and died 4 days later with me and mom by his side. I really do miss him. This July it has been 20 years since he passed away. Crazy! So much has happened in those 20 years. There is so much I wanted him to be part of. Grandma says she mad at him for missing all these little great-grandkids running around the house. I just wish he could have been here for her these last 20 years. I can't imagine my life without Ken for a month, 20 years would hurt so bad. Strange how I think of grandpa more as a father than my own dad. Grandpa spent the most time teaching Lewis and I about gardening and always always took care of us. I also love listening to him sing. I still play his music for the kids and I love hearing them sing along with him.
April 1982 Dennis and Pam's wedding.

Grandma and Grandpa's Backyard 1983

2 of my favorite pictures of me with him. I have photos of when I was older but these will always be my favorite. His birthday is on May 28th. I always have sweet corn for dinner to honor him as well as we eat popcorn for snacks all day long. His favorite foods.

May has always been a hard month emotionally for me. So much has happened for me in May and it brings up a lot of hard memories and old emotions. I guess that it is fitting that both my parents died in May. I am going out to lunch with someone that I have not seen in a very long time next week. Almost 16 years! Crazy how time flies by. I am trying to plan a lot of fun things this week and next to help make the rest of this month Sunday swimming at my in-laws after nap time. And so much more.

Tuesday, March 7, 2017

Tahoe trip, Kindergarten and Health stuff

February flew by so fast but I still can't believe it's already March. So much went on in that month too. I had a lot of doctor visits and Michael started OT. We even managed to take a small family vacation on top of it all. All in all it was a good month and I had a little fun for the first time in a long time. Maybe life is going to be a lot less stressful. One of the biggest helps is that I found a great therapist to work with and I made it happen. Therapy helps me so much.


Snow Trip
The trip to the snow was amazing and went much better than I thought it would. What made it even better is we went with anther family so the kids had play mates. Kaylee said thank you so many times I lost count. It was so nice to have a break from our day to day life. The kids played in the snow much longer than i thought they would.

Michael was not sure how to walk in the snow and was not happy if we made him walk!


Kaylee had a blast every day!

Sled time!!


My cutie

Family Photo

Group photo with the Muetschard Family

Playing with icicles off the roof!

I am so happy that we took this trip and even more happy at how well Michael handled the change. It gives me hope and makes me want to try and go camping this spring and summer! Anyways I hope that this is a start of a new tradition for both of our families. All 4 of the kids had a blast and there was no fighting. The 3 oldest kids all shared one room and every night everyone was asleep before 8:00pm. AMAZING right. 

Friendship
While on the trip I realized that Michelle and I have known each other for 23 years! That is over half of my life! It got me thinking about how much has happened over those 23 years and what each of us has gone through. So many changes both good and bad but still our friendship remains!
7th Grade 1993-1994

10th Grade 1997-1998

Friend 2017
So it was a great trip and we all had a blast next time I hope that we can try and stay for a one more night and do a few more things. 

Kindergarten
The first Wednesday after out trip Ken went down and registered Kaylee for Kindergarten! I can not believe she is that old already! I know that she is ready and keeps asking me when it starts and I think that is what makes it so hard for me, the fact that she is wanting to happen. She has no fear about anything and I love that about her but I feel like at 4 years old she does not need me any more :-( . She is so comfortable with everything and just goes with the flow. It is just so unreal. I am really happy that she can take care of herself and is so helpful. Just sad that she is not my baby anymore.

Insurance and Health
Also before we left on vacation I had a few procedures done and had a change of medication. Now my doctors have given me a few different choices/options for my next steps and I am not sure what to do. I go in this Thursday and we will take it from there. We are also in the process of getting new insurance with Ken's new work and they don't have Kaiser. It is all a little bit overwhelming for me. I am not sure if now is the best to change doctors and stuff with all the health issues that are going on. The kids are both going to stay on Medi-cal for now as long as they qualify. Once Michael is 3 he will stay on Medi-cal and Kaylee can be on what were. There is  no way we could ever cover the copay's for all of Michael's therapies and his medications.


Monday, December 19, 2016

Mostly Complaining

Totally negative post. This month has not been my favorite. I know most of it is stress and depression but I just can not seem to snap out of it as I had hoped. I feel like I am complain and negative all the time. So much stuff has come up this month that has left me feeling alone and confused.
First off I have had some health issues come up that I was completely unprepared for. It all started off with a stomach ache right after Thanksgiving and got a lot bigger than I ever thought possible. I feel as though my body is giving up on me just when I need to be on the top of everything most of all for my kids. Ever since my hysterectomy I have been dealing with one issue after the other. I have learned over the past 6 months that I have a very hard time talking about my health or even admitting there may be an issue. My therapist thinks that my body is trying to tell me something! I wish I knew what it was saying already.

Second right after all these health issues started I received an e-mail from my church stating the following:
Hi Sophie and Ken, 
Every year the council has the duty to review our membership roles and update them according to who has 
maintained their membership status according to our governing documents. Our bylaws state: 
C8.05.01 For purposes of membership roll maintenance, any member who during the
current calendar year and the two previous calendar years has made no contribution of record, nor has been recorded as communing or attending a worship service, shall be considered inactive. 
In our preparation for this year's review, we noted that one or more of these requirements was not met by you this year. This may not mean that your membership status is in jeopardy just yet. We wanted to be sure that you're aware of this and that we can help you fulfill your membership commitments if you wish to retain your voting member status. 
I have grown up in this church my whole family has gone to this church for almost 50 years and they sent me and e-mail. I am in church almost every Sunday and there during the week as well and no on thought it talk to me about this before sending an e-mail. First off it was a clerical error that should have been check on first and if someone had talked to me they would have found that out. I take my membership very seriously and also would never be a member of a church that requires "contribution of record". I should mention that I have never seen the church counsel enforce this  and was under the impression that it was either or not both! I have only ever seen people lose/remove membership for inactivity. I tried talking to Pastor and the council president about it and felt that I was not heard either time. I totally understand the business/money side of the whole thing I just feel that it should have been handled in person. I know it might seem stupid but I am really considering looking for a new church home and what sucks the most is it is Christmas and this hole thing is just to emotional for me to handle.

Lastly being a mom is all that I ever wanted but I am starting to think I am not going to be as good at it as I have hoped I would be. I am stuck at home Monday through Friday for Michael's ABA therapy from 8:00am until 12:30pm then Kaylee goes to school from 12:30pm to 3:30pm and Michael takes a nap from 1:00pm to about 3:00pm. So I never get out of the house anymore I never get to see other adults except on weekends. Ken is working all the time so I am alone with the kids all day every. Don't get me wrong we have fun and the kids are the best thing that ever happened to me but I need to be around other people. I feel like I don't know how to have a conversation anymore. I have nothing to talk about I have one clue about current events happening day to day. I feel detached from the world. This is not got for my depression or anxiety. I knew being a mom meant self-sacrifice but this so much harder than what I had ever imagined. I have been fighting and pushing for all this help for Michael and now we have it and I feel trapped. I keep trying to focus on the long term. In one year life will be 100% different from right now and that this will not go on forever. Now if I could just find a way to keep Michael healthy for 12 months. LOL

I am really trying to get into the Christmas spirit. Kaylee is so excited about everything. She loves all the decorations and all the lights every where. I love hearing her sing all the Christmas songs and asking so many question about the meaning of Christmas. Next year I am hoping that Michael will understand what is going on as well. Grandma has been a life saver! I would truly be lost without her. I don't know what I would do if I could not call her or go there with my crazy kids weekly and sit on her couch and cry about Michael's behavior or after a week of Michael not sleeping at night stay there during day sleep/nap while she watches the kids. I feel bad that she is the main person I rely on most of the time. She is 92 and handles it all so much better than I do.